Help Us

THANK YOU for joining the fight to get Mikaela the medicine she needs to live beyond 25. I want to specifically thank the Abigail Alliance for Better Access to Developmental Drugs for teaching me the best approach to winning this battle. We’re going to get this done, and I wanted to send you the gameplan and ask for some assistance from you.

First, an update: We received an initial rejection from Bristol-Myers Squibb (BMS), so we’re expanding the petition to include Merck & Genentech as well because they both have similar drugs of their own.

We need your help. Our next step is to request compassionate use access from Merck & Genentech, but we need contact information for the Oncology Director, VPs, and CEO at Merck & Genentech. It’d also be great to have the same information for our continued fight with BMS. I have email addresses for some, but I’d love to have phone & email for each. [Update: After posting this, my contact at change.org was able to send me the email addresses for all of the people mentioned — thanks Tim! Let’s focus our efforts on direct phone numbers so that they can’t shrug us aside!] If you have sleuthing skills and can find contact info for any of the following ASAP, you’ll be playing a key role:

Bristol-Myers Squibb
Michael Giordano, Senior Vice President Head of Oncology and Immunosciences Development
David Berman, Executive Director, Oncology
Andrew Coop, Vice President, Oncology Medical
Fouad Namouni, Vice President, Full Development Lead, Oncology

Merck
Kenneth C. Frazier, Chairman of the Board and CEO
Dr. Gary Gilliand, Senior Vice President and Head of Oncology
Eric Rubin, Vice President Oncology Clinical Research

Genentech
Richard H. Scheller, Ph.D., Executive Vice President, Research & Early Development
Susan Griffing, Sr. Director, Head of Oncology Global Operations
Patricia Moore, VP of Clinical Operations, Research and Early Development

Second help request: In tandem with this effort, we are starting a massive media push this week to put pressure on the companies in case we receive 2 more rejections. We’ve already scheduled a feature for a local news station here in Sacramento, and it will be important that you all help us distribute that content via social media so that nationwide networks will take notice. I’m going to post that here in the news section of the petition, on the She Got This blog, my Twitter feed, and on the Facebook page I just set up — keep an eye out for my post this weekend. If you have any media contacts that might be interested in this story, please email me ASAP at keithknappjr@gmail.com.

Mikaela’s been having a rough week in the ICU getting her pain under control, but I read some of the comments on this petition to her and they’re infusing her spirit with a great deal of hope. Many helping one – humans at our finest. I hope this campaign is helping you to appreciate your life and loved ones a bit more, and I’m so proud of you for stepping up to help someone on this pale blue dot.

Now let’s get those contacts!

With Love & Admiration,
Keith

7 thoughts on “Help Us

  1. Christina Williams says:

    Thoughts and prayer are with you! I suffer from 2 fors of lupus. CNS & SLE. I am currently fighting my insurance company for the only drug option I have to possible put the CNS lupus in remission. I know your struggles. Keep fighting the good fight!

  2. Courtney says:

    I doubt this is a direct line but might at least be a secretary for Andrew Coop: (212) 546-4000

  3. Courtney says:

    Same number was listed for David Berman so it’s probably a general number. I’ll keep looking!

  4. debbiezsoka says:

    Have u tried linked in?

  5. mary floyd says:

    I just wanted to let you know that I have been thinking about you, and have passed the petition to other people to sign! I will continue to do my best to get more signatures in your honor! I truly want you to know that I do care about you, and your situation, and I am praying and sending thoughts and hugs your way! God Bless! Mary Floyd Huntington Beach California

  6. J Wright says:

    Wow this is just such a heartbreaking story. These drug companies have only the money they want. It’s hard to believe they care at all about health in any other way than, ‘How can we profit from this.’ They fight amongst themselves over patents/cash, all while people, very sick people; Moms, Dads, Grandmothers, Grandfathers, Brothers, Sisters, Uncles, Aunts, Cousins, Dear Loved Friends and Perfect Strangers drop dead as they wait. What a load of crap…and they have the audacity to look confused when someone goes all postal on their asses…wow what’s happened to that thing called human compassion…
    I’m not sure if this is a well know site for looking up people, but here’s the link. I hope you get these jackasses phone numbers. This is a free look-up site and it does give address and phone numbers but not all.

    http://www.zabasearch.com/

    I really hope it’s helpful to you

  7. Lahti says:

    Best to you and Mikaela. Good luck in your fight with the drug companies. I’m not sure if you’ve heard of http://www.cancertutor.com, but I encourage you to check it out. I found out about this resource from a friend of mine who had stage 4 small-cell lung carcinoma, mets to the liver. He tried one tx of chemo and ended up in ICU with two weeks to live. That was about 2 years ago. He followed the protocol on cancertutor and it cancer free today. Actually cleared it up in his lungs first, then the liver. Perhaps you can find answers there.

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